I just realized I have no idea what the date was of Fenn's last surgery. I could figure it out if I really wanted to just by checking this blog haha but maybe thats a good sign that we are moving on from what happened over the summer. Fenn is doing so well now, his head looks great, he has two teeth in, he has started to work on the things he was doing before his first surgery like rolling over. Sometimes if I dwell on it I am bothered how the surgery has effected his development but I am so proud of him and he is trying so hard now to catch up. He is making lots of sounds and trying to talk to us, finally taking an interest in solid food (this was also do to his surgeries, I think the bottle was comforting and the morphine hurt his tummy so he wasn't interested before), he is holding his own bottle as of a month ago. I am so proud of him. I think he is most behind on the motor skills he would have learned while laying down, his other motor skills are fine. He can sit up by himself for about 5 minutes now before falling over, he never falls far of course because I still behind him. That's the other thing, we can't really let him learn everything on his own that way because we have to protect him from banging his head, not that any mom want their kid to bang their head but it does happen sometimes I'm sure. He still spends alot of time holding and feeling his head where the plates are and I don't know what he thinks about it.
Since he started holding his own bottle thats freed up a lot of time for us and he takes the little bit left to bed and falls asleep which is great. Before we had to make sure he was asleep before we put him to bed. I really fell like he is making improvements and getting back to some form of normalcy. I'm anxious for his next doctors appointment in December just to see how they think he is developing. Even though the surgeries are over as far as we know for now we still have to keep an eye on his development to make sure there was no brain damage from the swelling. I really don't feel there was because he is so bright and smart but that doesn't mean it won't present itself at a later date, I don't dwell on this. I spend my days teaching him and playing with him and learning and growing with him. Nothing really describes the difference he has made in my life or will continue to make and something about what he has been through, we have been through together, makes him all that more special to me if that was even possible.
October has been good to us, the first month without visits to the doctor or surgeries or Emergency visits. Visits from some of my favourite people Heidi Horner and Benn Quinn. We drove to see Heidi in Port Hope, just a random place to meet half way between Toronto and Kingston and also got to surprise visit one of my besties here Myles. Turned out to be providence to see him that day and it was good for both of our souls. Had a great dinner with Heids, wish it was longer, much longer but I will take what I can get. I was so glad she finally met Fenn. I'm hoping for just as much of a lovely November and I think we are going to N.B. for xmas, so excited for that.
On another note I am almost half way to the goal I set for the toy drive but we only have a week or so to go so I'm hoping at the last minute people donate lots of toys! It's exciting watching the pile grow here at home and thinking how happy the kids will be to receive the toys. The plan is for some of the toys to stay at the hospital and some to be given to the kids staying there to take home when they go. Crazy how such a little gesture puts such a big smile on someones face, even the parents. Fenn had no idea when he was given toys at 5 months old but it really made our day to know someone thought of us and cared about us. I hope this is something I can continue to do with Fenn as he grows up so he always appreciates what they did for him at Sick Kids and learns the importance of caring for other people.
Posts
